This is my post from yesterday on Facebook but I know some of my readers are not on there so reposting it to bring everyone up to speed. More has happened but I want to talk to the doctor today before I update again:
I'm not buying the whole IBD diagnosis as his test results do not support it short of him having a bit of narrowing at the junction of his large and small intestines. The pain is directly over his liver and not even close to the narrowing either. Nor is the pain triggered by his diet. They are missing something and at this point are treating him as a junky looking for drugs. I'm soo mad and insulted.
Last night he told them he felt an ear infection coming on and requested some drops. He is prone to them and since he has spent most of his time laying on that side, I'm not surprised. They refused to treat it and said he could wait until morning. By then his head was pounding and he was begging for meds. 6 hours passed and still they had not treated it. He went delirious from the pain and decided to leave as they were not helping him. They let him leave!!! He stumbled down to the main lobby and texted me to come get him!
I had stayed home this morning to give the kids a bit of normalcy. What a mistake. When I got there he was white as a ghost, no shoes and clearly not okay. I got him as far as the top floor and he collapsed onto a bench. I went to the desk and asked for help. They were going to refuse to let him back to his bed which they had already cleared and told us that he may have to go back to emergency if he wanted back in. I'm going to stop there and let's just say that I made sure he got back on that bed and treated.
The doctor on the phone ordered a mental evaluation at this point. They think this pain is in his head or at least not as bad as he is claiming!! By the time the psychiatrist was done a very different picture than these assumptious assholes were expecting was painted. Guess what. This guy with tattoos and shaggy hair has a respectable career, loving family and friends, and every reason to want to get better. Surprise! Do they think he has the energy to shave or that I should come in with my hair styled covering my tattoo oh and let me guess, makeup? I can't believe that some people are still like that.
I have to say, I think the psychiatrist knew more than the treating doctors he has been seeing! He was a godsend and I'm glad he actually had to come by as now I feel like maybe the others will listen.
As my aunt said, these doctors should humble themselves. If they cannot find the problem then they should send him to Vancouver or to another specialist that may have the answer we're missing here. Not just assume that since they fail to see it that it doesn't exist.
I hope they hear what the wonderful Doctor we saw today says in his report (which included a request to investigate the incident between Damon and the nurse leading to his melt down). There are still some gems in this world. He was one.
CAT
I'm not buying the whole IBD diagnosis as his test results do not support it short of him having a bit of narrowing at the junction of his large and small intestines. The pain is directly over his liver and not even close to the narrowing either. Nor is the pain triggered by his diet. They are missing something and at this point are treating him as a junky looking for drugs. I'm soo mad and insulted.
Last night he told them he felt an ear infection coming on and requested some drops. He is prone to them and since he has spent most of his time laying on that side, I'm not surprised. They refused to treat it and said he could wait until morning. By then his head was pounding and he was begging for meds. 6 hours passed and still they had not treated it. He went delirious from the pain and decided to leave as they were not helping him. They let him leave!!! He stumbled down to the main lobby and texted me to come get him!
I had stayed home this morning to give the kids a bit of normalcy. What a mistake. When I got there he was white as a ghost, no shoes and clearly not okay. I got him as far as the top floor and he collapsed onto a bench. I went to the desk and asked for help. They were going to refuse to let him back to his bed which they had already cleared and told us that he may have to go back to emergency if he wanted back in. I'm going to stop there and let's just say that I made sure he got back on that bed and treated.
The doctor on the phone ordered a mental evaluation at this point. They think this pain is in his head or at least not as bad as he is claiming!! By the time the psychiatrist was done a very different picture than these assumptious assholes were expecting was painted. Guess what. This guy with tattoos and shaggy hair has a respectable career, loving family and friends, and every reason to want to get better. Surprise! Do they think he has the energy to shave or that I should come in with my hair styled covering my tattoo oh and let me guess, makeup? I can't believe that some people are still like that.
I have to say, I think the psychiatrist knew more than the treating doctors he has been seeing! He was a godsend and I'm glad he actually had to come by as now I feel like maybe the others will listen.
As my aunt said, these doctors should humble themselves. If they cannot find the problem then they should send him to Vancouver or to another specialist that may have the answer we're missing here. Not just assume that since they fail to see it that it doesn't exist.
I hope they hear what the wonderful Doctor we saw today says in his report (which included a request to investigate the incident between Damon and the nurse leading to his melt down). There are still some gems in this world. He was one.
CAT
RSS Feed